I’m Samuel Safford from Pelham, and I want to share my story in response to the recent talk about the End of Life Options Act, HB 1283. At age 4, I was diagnosed with Duchenne Muscular Dystrophy (DMD), a rare genetic defect deemed fatal with no cure. Despite grim predictions, I stand (well, sit in my wheelchair) today, defying the odds. My life hasn’t been a walk in the park, though. Losing my dad when I was 13 was tough. And being the only kid in a wheelchair at school was hard. Lunchtimes were especially lonely. I often sat by myself, feeling sad and isolated.

In 2021 I was hospitalized, and they diagnosed me with Bartonella, a brain bacteria that made life feel like a never-ending nightmare. I woke up every morning wishing I hadn’t. With support from my mother, a compassionate counselor and homeopathic doctor, I found my way back from the edge. Three years later, I’m living a good life. I’m part of a group called Toastmasters, where I give motivational speeches. I write, I sing, I make art, and I’m super active in my church and community. I oppose HB 1283. While I empathize with those suffering, I believe in expanding palliative care and mental health support, not hastening death. Assisted suicide risks the lives of individuals like me, deeming us expendable. Let’s affirm the value of every human life. Reject HB 1283 and prioritize compassionate care over expedient solutions.

Samuel Safford

Pelham